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Dying at Home: The Alternative to In-Patient Hospice

Updated: Nov 30

Dying at home is a choice many people face as they approach the end of their lives. For some, this option provides comfort and familiarity. It allows individuals to remain surrounded by loved ones in a space they know well. Oncology research shows that up to 80% of people would prefer to die at home, yet many still opt for hospice care. This article explores different paths for those who choose to die at home, offering insightful details and practical guidance.


Understanding the Choice to Die at Home


Choosing to die at home often yields feelings of comfort and peace. The presence of family members in a familiar setting can ease anxiety. Yet, this decision comes with challenges, particularly regarding pain management and symptom control without hospice assistance.


Many may not realize that hospice is not the only option available. Some individuals may not qualify for hospice services due to specific health issues, while others prefer to avoid the structures that come with hospice care. Understanding these alternatives can empower families to provide optimal care during this vulnerable time.


In some circumstances, having a discussion with your physician can help facilitate the process of being comfortable passing at home. With more options available, some in-home health aides and hospice nurses are able to make house visits to assist with medication and pain management to ease the symptoms that come with end of life.


While dying at home is preferrable for most, be aware that clinical staff will still be involved in these suggestions for the most successful, and least uncomfortable option.


If payment or cost is a concern, check out our Paying for Hospice post.


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Pain Management Options

Managing pain effectively is a key concern for anyone nearing the end of life. Though hospice care usually offers extensive pain management, various alternatives exist to help families keep their loved ones comfortable.


Medications

Over-the-counter pain medications, like acetaminophen and ibuprofen, work effectively for mild to moderate pain. When dealing with severe discomfort, stronger prescription medications, such as opioids like morphine or hydrocodone, may be appropriate. While these are more beneficial, they do require a doctor to prescribe. It is never advised to offer sources of pain management not approved by a physician beforehand.


According to statistics, properly managed pain can improve the quality of life significantly. Always consult a healthcare provider to determine the right medication and dosage tailored to the individual's needs.


Palliative Care

Palliative care provides symptom relief and emotional support throughout any stage of a serious illness. Unlike hospice, which is often designated for those in their final months, palliative care can start as soon as a serious diagnosis is made. With an interdisciplinary team of healthcare professionals, palliative care can be delivered at home, focusing on pain management and improving overall quality of life.


Alternative Therapies

In addition to traditional medications, alternative therapies have gained popularity among families seeking ways to alleviate pain and discomfort. Options to consider include:


  • Massage Therapy: Gentle massages can relieve muscle tension and foster relaxation, offering significant help for those at the end stages of life.

  • Aromatherapy: Essential oils like eucalyptus and lavender can induce calmness and may help reduce anxiety. A study found that 94% of patients reported feeling more relaxed after a session of aromatherapy.


  • Music Therapy: Soothing music not only distracts from pain but also brings emotional comfort. Many studies show that music therapy can reduce pain perception significantly.


  • Meditation and Mindfulness: Mindfulness techniques enable the individual to focus on the present moment, encouraging relaxation and lowering stress levels. This is beneficial in the early stages, when consciousness is still present. As a person progresses in their passing, motor function and responsiveness will decrease, Mindfulness is still crucial for loved ones to help handle the complex emotions that come with grief and loss.


These are all methods that offer alternative treatments, however they have not been proven or disproven to aid in end of life care. It is advised to talk to your clinical care team to help make the right decisions for your loved one.



Creating a Comfortable Environment

The environment plays a crucial role in the psyche of someone nearing the end of life. Families can adopt several strategies to ensure a peaceful home atmosphere.


Personalizing the Space

Create a comforting space by surrounding the individual with familiar items such as family photographs, favorite quilts, or personal mementos. Research indicates that a serene environment with soft lighting and familiar objects can help ease anxiety and promote relaxation. These are the same practices that occur in in-patient hospice facilities, but may be more beneficial in a home environment the patient is familiar with.


Ensuring Privacy


Designating a quiet, private area in the home for the individual is important. This space should feel safe and secure, away from distractions and unnecessary noise.


Involving Loved Ones


Encouraging family and friends to visit can enhance emotional support. Sharing stories or simply being present can create a loving atmosphere, which fosters connection during this pivotal time.


Support for Caregivers


Caregiving during this time can be demanding and emotionally draining. Family members must care for themselves as well.


Seeking Help


It is vital for caregivers to ask for help from friends and family. Sharing responsibilities can lessen burdens and allow caregivers some much-needed time off.


Utilizing Community Resources


Many communities provide resources for families caring for someone at home. This may include access to support groups, respite care services, or healthcare professionals who offer ongoing guidance.


Practicing Self-Care


Caregivers must prioritize their well-being. Engaging in stress-reducing activities like exercise, meditation, or enjoying nature can positively affect one’s mental state.


Final Thoughts


Dying at home can be a profound experience for both the individual and their loved ones. While hospice care serves many needs, it is essential to highlight that there are other options. By exploring different pain management strategies, creating a calming environment, and ensuring caregiver support, families can navigate this challenging journey with grace. The ultimate aim is to cultivate an atmosphere where the dying individual feels loved, supported, and at peace, surrounded by those who matter most.


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