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Understanding Dementia Behaviors

Updated: Jun 24


When most people think of dementia, they think about memory loss. What often comes as a surprise is that dementia can affect far more than memory. It can change judgment, emotional regulation, decision-making, awareness, motivation, and even the way a person interprets the world around them.


This can be incredibly difficult for families because some of these changes may seem completely out of character. These changes are not simply a normal part of aging, nor are they usually a deliberate choice. As dementia affects different areas of the brain, it changes how a person processes information, responds to situations, and interacts with others.


Understanding why these behaviors happen can make them easier to recognize and manage as the disease progresses.


Poor Judgment and Risk-Taking

One of the earliest behavioral changes some families notice is poor judgment. Your loved one may begin making decisions that seem unusual, unsafe, or completely out of character. They may become more vulnerable to scams, give away money impulsively, let strangers into the home, ignore safety concerns, or insist on doing things that are no longer safe.


This can be particularly confusing because the person may still hold a normal conversation and appear capable in many other areas of life. Dementia does not affect every ability at the same time. Someone may be able to discuss current events or recall memories from years ago while simultaneously struggling to accurately assess risk.


If you begin noticing changes in judgment, it may be time to add safeguards before a crisis occurs. This might include monitoring finances, limiting access to large amounts of money, reviewing online activity, or having conversations about driving and home safety.


When Your Loved One Doesn't Think Anything Is Wrong

One of the most frustrating experiences for families is when a loved one insists they are completely fine despite obvious changes. This is not always denial. Some people with dementia experience a symptom called anosognosia, which affects their ability to recognize their own impairments. In simple terms, the brain loses the ability to accurately assess what it can and cannot do.


Because of this, your loved one may genuinely believe they are managing medications correctly, driving safely, or handling finances without difficulty. This can create tension when family members try to help. The person receiving assistance may feel controlled or criticized, while the caregiver feels ignored or dismissed.


When this happens, arguing rarely changes the outcome. Rather than trying to convince someone that they have deficits, focus on the specific issue at hand. A conversation about organizing medications is often more productive than a debate about whether they need help at all. Instead of telling your loved one they need help, frame the conversation in a way that suggests you want to help and there is no problem with how they are doing it.



Suspicion, Accusations, and False Beliefs

As memory becomes less reliable, some people begin developing explanations for things they cannot remember.


A missing wallet may lead to accusations of theft. A misplaced bill may result in concerns that someone is interfering with their finances. Forgotten conversations can create the impression that family members are hiding information or being dishonest. To your loved one, these concerns often feel completely real.


This can be especially painful when accusations are directed toward family members who are providing care. Some individuals may repeatedly accuse loved ones of stealing, lying, neglecting them, or taking advantage of them financially. In more severe situations, they may contact neighbors, banks, adult children, Adult Protective Services, or even law enforcement to report something they believe has happened. When these situations occur, try to remember that you are responding to a symptom of the disease, not a personal attack.


Avoid arguing or demanding that they admit they are wrong. Instead, focus on the concern itself. Help look for the missing item, provide reassurance, and keep records of important financial transactions and caregiving activities if accusations become frequent.


If these beliefs appear suddenly or worsen significantly, notify their healthcare provider. New behavioral changes can sometimes indicate an infection, medication issue, or another medical problem that needs attention.



Changes in Personality

Many families describe personality changes as one of the most difficult aspects of dementia. Someone who was patient may become short-tempered. A reserved person may become outspoken. A highly organized individual may become careless. Others may lose social filters and begin saying things they never would have said in the past.

These changes can feel like losing the person you once knew.


While some personality changes are related to frustration, others occur because dementia affects areas of the brain responsible for judgment, impulse control, and emotional regulation.


Try not to assume that every behavior reflects your loved one's true feelings. A harsh comment, an emotional outburst, or unusual behavior may be the result of changes occurring within the brain rather than a conscious attempt to hurt others.


Apathy and Loss of Motivation

Not every behavioral change involves agitation or confusion. In fact, one of the most common symptoms of dementia is apathy. Families sometimes interpret this as laziness, depression, or a lack of effort. In reality, dementia can affect a person's ability to initiate activities. They may still enjoy an activity once they begin, but struggle with the process of getting started.


This is why some people appear disengaged until someone else invites them to participate. A person who once enjoyed hobbies, social activities, volunteer work, or family gatherings may begin withdrawing from them. They may spend more time sitting quietly, show less interest in activities, or seem content doing very little.


Rather than asking broad questions like, "What do you want to do today?" it can be helpful to provide a specific suggestion of what to do or gentle invitation.



Wandering and Restlessness

Some people with dementia become restless, especially as the disease progresses.

They may pace, repeatedly attempt to leave the house, or become focused on going somewhere. Sometimes they are trying to return to a former home, go to work, pick up children who are now adults, or complete a routine that was once part of daily life.


To family members, these actions may not make sense. To the person experiencing dementia, however, the goal often feels entirely logical. Wandering can become a significant safety concern, particularly if the person leaves home alone or becomes disoriented. If wandering begins to occur, consider putting safety measures in place early. Door alarms, identification bracelets, GPS tracking devices, and notifying trusted neighbors can provide an additional layer of protection while allowing as much independence as possible.



Sundowning

Many caregivers notice behavioral changes that seem to occur later in the day.

A loved one who was calm throughout the morning may become more confused, anxious, restless, or irritable as evening approaches. This phenomenon is commonly referred to as sundowning.


Researchers do not fully understand why sundowning occurs, but fatigue, changes in lighting, disruptions to routine, and increased confusion at the end of the day are thought to contribute. While sundowning cannot always be prevented, maintaining a consistent routine, limiting overstimulation, ensuring adequate rest, and keeping the environment well-lit may help reduce symptoms.


Hallucinations and Delusions

In some forms of dementia, particularly later stages or certain types such as Lewy body dementia, individuals may experience hallucinations or delusions. They may see people who are not present, hear voices, believe strangers are living in the home, or become convinced of things that are not actually occurring.


These experiences can be frightening for both the person with dementia and their family.

If hallucinations or delusions occur, avoid immediately dismissing or arguing about what they are experiencing. Instead, assess whether the person is distressed and focus on reassurance. Because hallucinations can also be caused by infections, medication side effects, vision problems, or other medical conditions, it is important to discuss new symptoms with a healthcare provider.



Looking Beyond the Behavior

One of the most important things caregivers can do is look beyond the behavior itself.

Behaviors rarely occur without a reason. Pain, fear, boredom, loneliness, hunger, fatigue, confusion, overstimulation, and medical issues can all influence how a person with dementia responds to the world around them. When a new behavior appears, it can be helpful to ask what might be causing it rather than focusing only on stopping it.


Understanding the reason behind a behavior does not solve every challenge, but it often provides a better starting point than assuming your loved one is being difficult on purpose. As dementia progresses, behaviors may change just as memory changes. Learning what is happening and why can help you respond with more confidence, reduce unnecessary conflict, and better support your loved one through each stage of the disease.


To move onto safety tips, check out Dementia-Proofing Your Home or continue preparing for the future with Financial and Legal Planning in Dementia

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